Eating Tips for Fabry Disease
If you click on the images, they open up in a separate window.
UPDATE on July 10, 2021: I do not have Fabry disease.
I believe I have Fabry disease and I may need to keep some of these things in mind as I choose my diet. I have found a low FODMAP diet seems helpful. Areas where I differ from below is that Jesus has stated that the vegetarian diet is not healthy and he’s told me that I eat too much fiber. But that may just be me as I tend to pig out on high fiber foods. Satan seems to have an obsession with messing with human genes. and check out my page with lots of helpful info about Fabry disease.
Whatever you do, do NOT get the coronavirus vaccine as we know FOR SURE it makes you retarded (a different matter from Fabry), but something none of us should want! Brent Spiner M.D. says Loree McBride designed the coronavirus vaccine to give people the coronavirus, like how the Jesuits designed the flu vaccine to give people the flu. And then Brent said that the coronavirus vaccine is like the flu vaccine in that it’s designed to give you what it’s supposed to protect you from and it’s also 100,000 times worse than the flu vaccine according to Brent. Does anymore need to be said?
Jesus gave me the Gail Commandments in 2016, knowing full well all my medical conditions (which, apparently, also included Fabry disease) and I can’t imagine anyone a better doctor than Jesus. By the way, Jesus has commented about how the world has been handling Covid-19. Though Jesus has not weighed in on the coronavirus vaccine, my husband Brent Spiner M.D. has, and he says it’s a disaster and does not recommend anyone take it. Brent is not against all vaccines however, but has advised me to avoid the flu and coronavirus vaccines. Jesus has told me that he has appointed Brent in my life as my advisor and my soulmate, so I presume we should respect my husband Brent’s opinions. I have also made Brent my Vice President.
Eating Tips for Fabry Disease
Reviewed by Brunilda Nazario, MD on April 19, 2021
IN THIS ARTICLE
- Go Easy on the Sodium
- Get the Right Amount of Protein
- Choose Heart-Healthy Options
- Change How You Eat
- When to Talk to Your Doctor
If you have Fabry disease, changing what you eat may help you manage some of your symptoms. Good nutrition will also benefit your heart and kidneys.
There isn’t a specific Fabry disease diet. You’ll need to work with your doctor and a registered dietitian to find a balanced plan. They’ll pick one based on your symptoms and overall health. The goal is to help you eat comfortably while getting all the nutrition you need.
Go Easy on the Sodium
Over time, untreated Fabry disease can damage your kidneys. You may not filter out sodium very well. That’s a mineral in salt that affects how your body holds on to fluids. If you can’t get rid of it, you can end up with other health problems, such as high blood pressure, body swelling, or shortness of breath.
Ask your doctor how much sodium is right for you. You may not need to cut back too much if your kidneys work well.
If you do need to stick to a kidney-friendly diet, aim for less than 2,000 milligrams of sodium a day. Try these tips to stay on track:
- Buy fresh food
- Cook for yourself
- Use non-salt spices, like herbs or sodium-free seasoning
- Rinse canned food with water (vegetables, beans, meats, fish)
DID YOU KNOW?
Following a heart-healthy diet can lower your chances of stroke and heart disease, along with kidney failure. That’s good news if you have Fabry disease.
Talk to your doctor about salt substitutes before trying them.
Check the Nutrition Facts label to see how much sodium a product has. Pick foods with a 5% daily value or less.
Get the Right Amount of Protein
Ask your health care team how much protein you need. They’ll consider things like your age, body size, and how well your kidneys work. You may not need to limit your protein too much if your Fabry disease is stable.
Talk to your doctor if you’re on dialysis. Your protein needs will be different. If you’re not on dialysis, follow these healthy tips:
Get protein from plants. Experts used to think vegetables couldn’t give you all of your essential amino acids — the “building blocks” of protein. But that’s not the case anymore. Studies show that plant-based proteins put less strain on your kidneys when compared to animal-based foods.
Some options include:
- Tempeh and tofu
- Beans and legumes
- Seeds
- Unsalted nuts or nut butters
- Grains like quinoa or brown rice
Eat lean meats. Try skinless chicken, turkey, or 95% lean ground beef.
Choose Heart-Healthy Options
Heart-healthy foods lower your chances of stroke, heart disease, and kidney failure. That’s good news if you have Fabry disease. Ask your doctor about anti-inflammatory, Mediterranean, or DASH diets. But you don’t need to follow a specific plan to see benefits.
You’ll want to include more of these:
- Fruits and vegetables
- Olive oil
- Whole grains, like oats and brown rice
- Beans and legumes
- Fat-free or low-fat dairy
- Fatty fish (such as salmon or tuna)
- Fortified non-dairy milks
Skip or limit foods high in saturated fat and added sugar, such as:
- Ultra-processed foods like cake, cookies, and chips
- Sugary drinks, including juice and soda
- Refined carbohydrates like white bread or white rice
- Red or processed meat
Change How You Eat
Stomach problems are common with Fabry disease. Digestive issues may be the first symptoms you get. That includes belly pain and diarrhea. You may get really full after you eat a small bit of food.
Your doctor or dietitian may give you medicine to ease some of your symptoms. But they may also suggest you try these tips:
Pay attention to your portions. Your stomach might not swell as much if you eat less food at once. Try to eat 4-6 small meals throughout the day. See how you feel when you only eat 1 to 1.5 cups of food.
Follow a routine. Once you find an eating plan that works for you, stick to it. Sudden diet changes can make your diarrhea worse. And you may get constipation if you don’t eat on a regular basis.
Try a low-FODMAP diet. You may have a hard time digesting certain carbohydrates. These are called FODMAPs. They’re found in foods like wheat, dairy, and some fruits and vegetables. Talk to your dietitian if you want to try a low-FODMAP diet.
Avoid your trigger foods. You’ll need to figure out which ingredients make your symptoms worse. But you may want to limit:
- High-fat food
- Caffeine
- Alcohol
- Spicy food
When to Talk to Your Doctor
You may not get enough vitamins and minerals if you have diarrhea often or you can’t eat much. Your doctor can check if you’re low on any nutrients and suggest ways to boost your levels.
Small changes in your diet can make a big difference. But you should tell your doctor if your digestive symptoms don’t get better. They may need to run some tests to find out if something else going on.
Fabry disease is a rare genetic disease that is associated with problems breaking down a specific type of fat called globotriaosylceramide (Gb3 or GL-3). When GL-3 is not broken down into building blocks that cells can use, it builds up inside cells and causes damage. This leads to symptoms such as chronic pain, increased risk of heart disease, kidney damage, and gastrointestinal problems.
Gastrointestinal symptoms of Fabry disease
Gastrointestinal symptoms are very common among Fabry disease patients and are among the first signs of the disease. They occur in children and typically become more severe with age.
Abdominal pain and diarrhea represent the most common gastrointestinal symptoms in Fabry disease. A subset of patients also experiences constipation. In some patients, diarrhea and constipation alternate with periods of normal bowel movements. Upper gastrointestinal symptoms are less common, but can cause significant distress. They include nausea, vomiting, and early satiety.
Many patients can tolerate only small meals; regular-sized meals cause a feeling of being uncomfortably full and displaying signs of gastrointestinal distress.
Some patients also have an intolerance toward dairy products, fatty foods, and spices.
Dietary interventions to relieve gastric discomfort
High-fat foods increase satiety (the feeling of being full), slow gastric motility, and delay gastric emptying. For patients struggling to eat a full meal, low-fat meals may help them to eat more.
A change in meal patterns toward smaller, more frequent meals also may help to relieve gastrointestinal distress.
The timing of meals can make a difference, too. Late-night eating can be problematic even in healthy people, but especially so for people with gastrointestinal issues.
Patients should pay attention to which foods they do not tolerate and try to eliminate them from their diet.
Probiotics may improve digestion, which relieves gastrointestinal symptoms.
Additional information
A healthy, balanced diet is recommended for Fabry disease patients because it also may reduce the risk of heart disease and improve overall health. Interesting, because Jesus gave me the Gail Commandments in 2016, where he recommends a healthy, balanced diet.
BOTTOM LINE: If anyone suspects they have Fabry disease, contact Brent Spiner M.D. at gailsmen@yahoo.com and he may be able to treat you using state of the art technology at Church of Gail, like I suspect he’s doing for me. I also would like to say that having had this disease my whole life, try not to worry too much about it and control what you can and then don’t worry about the rest, and do Jesus Christ’s Gail Commandments. Keep a healthy balance between thinking about your diet and your life and understand that too much preoccupation with your body and its symptoms can actually bring on psychosomatic symptoms. I should know, I do it all the time. With this condition, I may never feel 100% fine and that may never happen till I get my resurrection body in heaven and the millennial reign. So just be grateful it’s not worse and strive to honor true love and stay focused on that. In the end, Jesus will end up fixing everything, so stay in His plan.